When to seek a second opinion after a diagnosis of Duchenne muscular dystrophy
It’s helpful to understand how DMD is diagnosed, and how this may differ from the diagnostic process of other diseases.
Features
-
-
How to handle anxiety while waiting for test results that may confirm DMD
A therapist can help you process the emotions you’re feeling.
-
Mexico, likely home to thousands with DMD, lags in recognizing and treating the disease
Advocacy groups in the country are working to establish a Duchenne registry and clinical guidelines.
-
Finding a better night’s sleep: Tips for getting used to a BiPAP machine for DMD
Though BiPAP machines carry many benefits, those with DMD often have a hard time getting used to them.
-
As some families know, Duchenne MD isn’t always a disease of boys alone
Raniya and her younger brother were treated with Sarepta’s single-infusion gene therapy in October 2024.
-
These young men are pursuing careers in music, despite their Duchenne diagnosis
“It’s just a matter of figuring out how to keep using my voice,” Rothe said.
-
What to know about DMD and scoliosis
Scoliosis often develops within two years after a patient begins using a wheelchair full time.
-
Norwegian man’s love of gaming inspires Netflix film and millions for DMD research
A documentary exploring the life of a World of Warcraft player with DMD has raised awareness of the disease.
-
What is a cough assist device for DMD?
Over time, people with DMD lose the ability to cough effectively. Cough assist devices can help.
-
As war continues, Ukrainians with DMD seek safety and treatment abroad
Misha and his family fled their home when the war began and now live in Richmond, Virginia.
