What is the history of Duchenne muscular dystrophy?
Over the decades, a greater understanding of DMD’s genetic origins has led to significant breakthroughs.
Features
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Grandparents join the fight to advocate for their grandsons with Duchenne
“Finding an audience for a rare disease is very difficult, but I’m pushing hard.”
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As life expectancy grows, more adults with DMD are not only surviving, but thriving
Thanks to advances in care, life expectancy in DMD has improved dramatically over the past 20 years.
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As weight loss drugs gain in popularity, people with DMD are taking notice
The hormone-mimicking meds diminish appetite, but their use by people with DMD “should be considered selectively,” doctors say.
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Vacation planning: Tips for traveling when your child has DMD
Make sure the places you are visiting and how you get there support your child’s needs.
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How to ‘Light Up for Rare’ on Rare Disease Day
Landmarks worldwide will light up on Rare Disease Day.
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What is prenatal testing for DMD?
A genetic counselor will play an important role in helping to explain the results and the next steps.
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How to help a child with DMD make friends
The unique challenges associated with DMD means it may take extra effort to make friends.
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When is it time for a power wheelchair in DMD?
Whether across a room or across campus, a power wheelchair provides independence and freedom to move around.
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Telemedicine 101: Making the most of virtual visits for DMD care
Virtual visits can make accessing care easier for many.
