Susannah Barnett

All articles by Susannah Barnett

• When is it time for a power wheelchair in DMD?

  Whether across a room or across campus, a power wheelchair provides independence and freedom to move around.

• How the school day can be adapted for children with DMD

  From cleared pathways to extra time in written tests, small changes can make big differences in the school day of a child with DMD.

• What to know about vaccines and DMD

  Vaccinations help protect people with DMD from respiratory diseases that can be especially dangerous to their health.

• Someone to talk to: Finding mental health support for DMD

  Finding mental health support might sound like a burden, but the benefits can be well worth the effort.

• A new set of wheels: The basics of power wheelchairs for DMD

  Power wheelchairs aren’t one-size-fits all: Almost every aspect can be tailored to the user.

• What is fat embolism syndrome?

  Fat embolism syndrome can be life-threatening, and requires emergency care.

• How to recognize the early signs of stress and anxiety in DMD

  Just because stress is common doesn’t mean it should be ignored.

• What is palliative care for DMD?

  Palliative care asks a patient what living well means to them.

• How to keep track of DMD medical records

  The paperwork adds up, so finding an organizational system that works for you is important.

• What is accessible gaming?

  Every accessible gaming setup is unique to the user’s needs, and will change over time as their needs change.