Susannah Barnett

All articles by Susannah Barnett

• A new set of wheels: The basics of power wheelchairs for DMD

  Power wheelchairs aren’t one-size-fits all: Almost every aspect can be tailored to the user.

• What is fat embolism syndrome?

  Fat embolism syndrome can be life-threatening, and requires emergency care.

• How to recognize the early signs of stress and anxiety in DMD

  Just because stress is common doesn’t mean it should be ignored.

• What is palliative care for DMD?

  Palliative care asks a patient what living well means to them.

• How to keep track of DMD medical records

  The paperwork adds up, so finding an organizational system that works for you is important.

• What is accessible gaming?

  Every accessible gaming setup is unique to the user’s needs, and will change over time as their needs change.

• What are “moon boots” for DMD?

  Ankle night braces have different designs for different needs.

• Do wish foundations help children with Duchenne?

  Many wish recipients say they feel a new sense of optimism after the experience.

• Finding a better night’s sleep: Tips for getting used to a BiPAP machine for DMD

  Though BiPAP machines carry many benefits, those with DMD often have a hard time getting used to them.

• What to know about DMD and scoliosis

  Scoliosis often develops within two years after a patient begins using a wheelchair full time.