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DMD Voices

The latest insights and perspectives from people who have lived and struggled with DMD

  • Sachin Munshi DMD through my family, voice and eyes

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  • Steffni Randle One in 50 million: How I was diagnosed with Duchenne muscular dystrophy

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  • Sarka Palouckova When everything changed after a simple fall 

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  • Sarka Palouckova DMD doesn’t wait, and neither can families: A grandmother’s plea for better guidance

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  • Sarka Palouckova The day hope for DMD knocked at my door, with a bill in hand

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  • Sarka Palouckova Left in silence: Families facing rare diagnoses need better support

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  • Conor McAuley What it was like to be diagnosed with Duchenne muscular dystrophy at 3 years old

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Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.

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