Mexico, likely home to thousands with DMD, lags in recognizing and treating the disease
Advocacy groups in the country are working to establish a Duchenne registry and clinical guidelines.
Features
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Finding a better night’s sleep: Tips for getting used to a BiPAP machine for DMD
Though BiPAP machines carry many benefits, those with DMD often have a hard time getting used to them.
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As some families know, Duchenne MD isn’t always a disease of boys alone
Raniya and her younger brother were treated with Sarepta’s single-infusion gene therapy in October 2024.
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These young men are pursuing careers in music, despite their Duchenne diagnosis
“It’s just a matter of figuring out how to keep using my voice,” Rothe said.
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What to know about DMD and scoliosis
Scoliosis often develops within two years after a patient begins using a wheelchair full time.
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Norwegian man’s love of gaming inspires Netflix film and millions for DMD research
A documentary exploring the life of a World of Warcraft player with DMD has raised awareness of the disease.
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What is a cough assist device for DMD?
Over time, people with DMD lose the ability to cough effectively. Cough assist devices can help.
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As war continues, Ukrainians with DMD seek safety and treatment abroad
Misha and his family fled their home when the war began and now live in Richmond, Virginia.
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How can service dogs help with Duchenne?
A service dog can provide companionship and independence.
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Tips to manage weight gain from steroids for DMD
Maintaining a healthy weight helps reduce the stress on joints and muscles.
