Susannah Barnett

All articles by Susannah Barnett

• Breathing easier: Understanding nocturnal ventilation for DMD

  In children and young adults with DMD, muscle weakness puts a strain on the diaphragm and other respiratory muscles.

• What is a standing frame for DMD?

  Standers carry many benefits, like better circulation and digestion.

• What is a medical ID bracelet for DMD?

  Some medical ID bracelets link to QR codes or apps with more detailed information.

• Traveling with a power wheelchair: Tips for people with DMD

  Part of the thrill of traveling is the anticipation and preparation of your trip.

• How can an IEP help a child with DMD?

  An IEP is a customized education plan designed to address the unique needs of a child living with a disability.

• Can girls have Duchenne?

  Most women and girls who carry the mutation for DMD won’t ever have symptoms — but some will.

• How to support the siblings of children with DMD

  Siblings of children with DMD need support, too.

• What are orthotic devices for DMD?

  Leg braces and wrist splints help support weakened muscles and prevent muscle stiffness in DMD.

• Hitting the road: Driving with Duchenne muscular dystrophy

  Learning to drive an adapted vehicle is a large investment of time and money — but for some young adults, it’s worth it.

• What is adaptive clothing for Duchenne muscular dystrophy?

  Adaptive clothing is specifically designed to be more comfortable, stylish and easy to wear for people with disabilities.