Sarka Palouckova

All articles by Sarka Palouckova

• A snapshot of William’s life with Duchenne muscular dystrophy

  Each day, I try to balance letting him explore the world with understanding when his body needs rest.

• Determination is taking us around the world for DMD care

  I can’t control the timing of medical breakthroughs, but I can make sure he’s ready when the moment comes.

• William’s world: A grandmother’s journey through Duchenne

  I want the world to understand that behind every medical term is a family doing everything they can to hold things together.

• When everything changed after a simple fall 

  What I want to say to other families is this: trust your instincts.

• DMD doesn’t wait, and neither can families: A grandmother’s plea for better guidance

  Many families are struggling to navigate the system.

• The day hope for DMD knocked at my door, with a bill in hand

  For a moment, I thought it had to be a mistake. How could the life of a child be priced at that amount?

• Left in silence: Families facing rare diagnoses need better support

  When we receive this life-changing news, we need to hear that there is something we can do.