Families and care teams face obstacles to shared decision-making in DMD
The lack of clear information combined with the limited treatments for DMD impact shared decision making between families and providers.
The lack of clear information combined with the limited treatments for DMD impact shared decision making between families and providers.
Parents of patients with DMD exhibit some positive psychological and emotional growth, but would benefit from better support systems.
Patients with Duchenne muscular dystrophy (DMD) who can walk beyond the age of 12 appear to have better cardiac function during adulthood.
Patients with DMD were shown to more frequently experience bone fractures than those without DMD.