Clarissa Brincat

All articles by Clarissa Brincat

• Video-based rehabilitation helps children with DMD breathe better

  Doing pulmonary rehabilitation through telemedicine for three months can greatly improve breathing in children with DMD.

• Muscle protein desmin may protect the heart in DMD

  Treatments that boost levels of the muscle protein desmin may help protect the heart in people with DMD.

• Blood proteins may predict how quickly DMD will progress

  Blood tests could one day help doctors predict how quickly DMD will progress and measure how well new treatments are working.

• Fabric ‘exosuit’ designed to boost arm movement in DMD

  A new wearable “soft exosuit” developed by researchers in Korea may help people with DMD lift their arms and shoulders.

• Research suggests tracheostomies are often unnecessary for people with DMD

  Many patients with DMD can live well into adulthood using continuous noninvasive breathing support combined with cough-assist devices.

• Report highlights disconnect between young patients and caregivers

  A new report reveals a communication gap between young people with rare diseases and their caregivers in preparing for adulthood. 

• People with DMD want more inclusive sex education, study finds

  People with Duchenne muscular dystrophy (DMD) and similar conditions want more inclusive sexual education that meets their unique needs.

• Study finds new corticosteroid for DMD improves mobility with fewer side effects

  Vamorolone can offer the same benefits as traditional glucocorticoid medications used to manage DMD, but with fewer side effects.

• New study calls for more awareness of mental health problems in DMD

  DMD is often seen as a muscle disease, but new research shows many with DMD also face mental health and neurodevelopmental challenges.

• Parents need better awareness of respiratory care for DMD, study finds

  Although the parents of children with DMD understand the basics of pulmonary problems, they lack knowledge about advanced respiratory care.