If you are waiting to find out if your child has Duchenne muscular dystrophy (DMD), you’ve probably been searching for an explanation for their frequent falls or other worrisome symptoms. From first suspecting something was wrong to now fearing the worst, the journey is likely to have been an emotional rollercoaster.
DMD is a life-changing diagnosis, and it’s completely normal to feel anxious. While feeling stressed is unavoidable, there’s steps you can take to help ease the anxiety and prepare to hear the results.
Talk to trusted loved ones
In times of crisis, it is always a good idea to lean on friends and family for support. Given the private nature of your child’s health, you may want to only share your concerns with a close circle of loves ones who genuinely care about you and know how to respect your need for privacy.
In addition to confiding with trusted family members and friends, you may also reach out to DMD advocacy groups. Organizations such as Parent Project Muscular Dystrophy have a long history of advocacy and may be able to put you in touch with people who can help ease this period of waiting.
Ultimately, the key is to ensure that you are not suffering alone in silence.
Practice deep breathing exercises and mindfulness
While some may think of deep breathing exercises and mindfulness as unimportant in the face of such a serious life event, studies and anecdotal evidence show that they can have an incredible effect, helping you relax and reframe negative thoughts.
When we get anxious, our breathing rate tends to increase, and our thoughts may start to race. By intentionally forcing your body to slow down, you allow yourself the space to catch your breath. Mindfulness allows you to focus on the here and now and slow down any racing thoughts.
By prioritizing your peace of mind, you are ensuring that you are in the best mental headspace to deal with a potential diagnosis.
Find more helpful links and resources about DMD.
Talk to medical professionals
If your anxiety is at a level where you can’t focus, your eating habits have changed, you can’t fall asleep, you’re struggling to work or you’re having trouble carrying out everyday activities, it may be a good idea to reach out to a mental health professional. A therapist or psychiatrist can help you process the emotions you’re feeling.
In addition to a mental health counselor, it may be useful to speak with a medical professional on what you can expect if your child is diagnosed with DMD. You may ask about the types of therapies available and how best to support your child in dealing with this rare disease. Remember that help is always available and that, with the right support, your child can still live an active, happy life despite a diagnosis of DMD.
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